Wednesday, November 3, 2010

Update on Lymphedema Diagnosis and Treatment Cost Saving Act - HR 4662

I feel like it's sort of cheating when I take Heather Ferguson's emails and make them into blogs about lymphedema though I have her permission. Plus the post helps get the word out further on HR 4662, the Lymphedema Diagnosis and Treatment Cost Saving Act of 2010. (Seems if this doesn't pass soon, someone will have to change the date on that act to 2011.)


Heather Ferguson writes:

"It is my pleasure to inform you that our bill sponsor, my Congressman, Larry Kissell of North Carolina’s 8th district, has been re-elected! 

I have just returned home from his campaign headquarters where I awaited the results with his staff, a room full of diehard volunteers, a litany of reporters and the Congressman himself.  It was very exciting to be there when the election was called in his favor.

I spent most of the day at the polls handing out campaign literature and talking about our bill.  I even printed copies of one of the early press releases from Kissell’s office that talked about what lymphedema is, the importance of treatment, and how he decided to sponsor what is now HR 4662 after meeting with me, so that I could hand these out too.  I share this because as a result other good things happened today. 

One woman returned to talk to me after I gave her my information and told me she had lymphedema in one leg and her doctor recommended nothing except that she control her salt intake!  Another woman I approached after she had voted and I asked her if she had lymphedema because it was abundantly obvious to me that she did and it was not being treated.  Both were so appreciative of the information I was able to give them and it certainly made me feel good knowing that despite whatever the election outcomes might be I had helped at least these two people today.

But of course through this legislation we will help so, so many more, and it is such a blessing that we are now assured of being able to push on in the next Congress, without skipping a beat!"

lymphedema awareness blue butterfly pictures, backgrounds and imagesCongratulations to Congressman Kissell (D)! Congrats to Heather for her continued hard work.

Read Congressman Kissell's letter to his constituents.



Read more about Heather and her 3 year old son, Dylan who suffers from primary lymphedema (like me) only he has to live his whole life suffering when mine is practically over.

2 comments:

Gina Fit by 41 Maybe 42 said...

That last sentence about her son got to me. (breath) My mom has had Juvenile Rheumatoid Arthritis throughout her whole body since she was 2. Just thinking about her or any child suffering just...anyway...

Great news about Kissell and the pushing for HR 4662 without further interruptions.

Tammy said...

Thanks for your comment last night....I'm going to check out that book. Thank you. :)